u/NemoMeowDTD

Hey yall, so I had my appointment on the second, my doctor basically said that due to rising tumor (1.0 difference. 2.9 in February, 3.9 in June.) markers and a single swollen retroperitoneal lymph node measuring 1.4cm they are now suggesting I be referred to a medical oncologist for possibly BEPX3, is this standard? I was hoping to avoid chemo all together, I am going to contact Dr Einhorn to ask for his opinion, what concerns me a bit so that my pathology was predominantly Teratoma, but I did have EC and YS. (20%, 5% respectively.) is primary RPLND still on the table? Or is chemo basically a given? I was trying my best to avoid PC-RPLND due to trying to get nerve sparring if possible. Any recommendations that I should ask Dr. Einhorn? Thank you all for your collective knowledge 🙏 I love this community and I appreciate you all

Hey yall, it’s been a hell of a ride these last 8 months, I had my radical orchiectomy on October 3, 2025 and pathology stated 75% Teratoma, 20% EC, 5% YS, my doctor decided surveillance was the best option as I did not have any high risk factors. (Lower end EC, No LVI, No spread outside the testicle.) I was placed on surveillance and had my first “official” CT scan in February, everything came back normal, tumor markers were stable, still dropped a ton from my last one in December, everything normal in my CT scan. Fast forward to June, I had my bloodwork done last Friday, and immediately the first worrying sign appeared. AFP jumped from 2.9-3.9 in a little over 4 months, LDH also raised slightly, I immediately began to freak out as most of us know how any sort of change and even normal bodily functions begin to become signs of reoccurrence after our diagnosis. I began to have lower back pain that faded within a day, nothing major but after my CT scan there it was, two lymph nodes that are borderline, no officially verbiage was used to specifically say it’s for sure cancer, not even said “suspected for metastatic disease” but sure enough 2 lymph nodes on the larger end and “currently meeting the criteria for lymphadenopathy” they mention that one would raise concerns for potential metastatic disease. I will see my doctor next week on the 2nd to talk about this, but due to my pathology seems highly likely an RPLDN is in the books.

This has been such a stressful 24 hours, but we’re all still here and thriving regardless of circumstances. I’m back yall thank you for always being here when we need to vent.