I’ve had this tie for maybe a year or two. Maybe 20 wears max and it’s falling apart. Pretty frustrating.
Do I need to spend $200 on a Ferragamo to get a tie that lasts?
Is anyone else in a permanent flare? I was on colchicine for almost two years before having to quit because of side effects. It kept my symptoms at bay mostly, but within 1 week of quitting my chest pain is back.
Seems like this flare is now permanent? What do I do?
Is anyone else in my situation?
I tried Arcalyst for 6 months but it didn’t help and gave me lots of strange arrhythmias after injections
Been going through a long but controlled flare for 20 months and taking colchicine the whole time.
Tolerated it well for the first year, but about a year into it I started feeling dizzy. At times I questioned if it was due to the colchicine, but never was convinced enough to entirely taper off.
By month 19 and I was getting dizzier every day. Eventually got muscle weakness, difficulty with fine motor skills like typing, tingling, pins and needles, tinnitus, light sensitivity, and headaches.
I quit a week ago and my dizziness is slowly subsiding along with the neurological symptoms.
I was 90%+ convinced I had MS (multiple sclerosis). I’m mostly posting this so you don’t have to go through that if you’re having these symptoms while on colchicine.
This cost me a LOT in ER fees trying to figure this out. Everything came back completely normal. My kidney labs, my blood CK levels, brain MRI, spine MRI, ekg, heart echo, all normal.
I’m now, after quitting, convinced it was the colchicine all along. There aren’t many stories here on Reddit, but if you go to Facebook’s Pericarditis page, you’ll see many people with similar experiences to mine.
May Christ bless you all and be with you on this journey.
History: recurrent pericarditis related to Covid shot in 2021. Recently had a cold and towards the end of it developed weak hands (harder to move and they feel tight) and lowered dexterity in hands, streaks of pins and needles and numbness going down arms sometimes, patches of pins and needles on feet and legs. These are all transient throughout the past week.
I had a clear brain MRI two months ago, but no spine MRI
In the background have been dealing with dizziness, tinnitus, and headaches.
Has anyone else had the same? I’m feeling like this is almost certainly MS, but hoping it’s not.
UPDATE: 1 day later: Brain and neck MRI are clear. I’m at a loss of what could be going on.
Just found this subreddit a week ago or so. Quit coffee & caffeine cold turkey. Was probably drinking the equivalent of 3-6 coffees a day.
Stress was worse than ever 1-3 after quitting. At day 7 I’m basically completely fine and stress free.
TLDR: quit caffeine; stress went away. Took a week.
Male 34. Have been on 0.6 colchicine once a day for 1.5 years because of a long flare.
I’ve developed mild dizziness over the last few months and have no idea what to contribute it to. Colchicine? Inner ear? Neck? Not sure.
No other symptoms to report, just dizziness that comes and goes. Generally worse when I’m up and around moving, but not any worse with exercise.
Has anyone who initially tolerated colchicine well for over a year started getting dizziness?
Edit: I’ve had pretty bad posture because leaning forward helps relieve chest pressure, so maybe part of me thinks neck issues, but who knows.