u/NorthShore1337

On wednesday I awoke to a pain in my lower back that made it difficult to sleep. By end of day, it was painful to take deep breaths with my right lung so I went to the ER.

After a bunch of tests they determined via CT scan that I had bilateral pulmonary emboli. I started on Apixaban immediately and will be going to a Thrombosis clinic on Aug 26th.
The first night was painful to sleep, but now I actually feel pretty good and my lung does not really hurt anymore.

I am 49, very active/healthy, and had no known provocations for the clots. A few days prior, my left calf muscle had been sore (feeling a bit like cramp). There were no other signs (no swelling, redness) but I do wonder if that may have been a leg clot that eventually moved into my lung? About a month earlier I had twisted my left leg in a weird way on a chairlift and so that is the only thing I can think of that may have possibly caused an injury.

I live in North Vancouver and mountain bike almost daily. I am pretty devastated because I will not be allowed to bike for at least the next three months while I am on Apixaban.
What I really fear, though, is that since there was not really a clear provocation, I may be doomed to permanent anticoagulants, which would mean giving up MTB forever and any other of the fun sports.

I obviously need to wait until the Thrombosis clinic does a more thorough investigation, but I am trying to be realistic about the possible prognosis.

I feel like one of the only glimmers of hope is if Factor XI/XIa inhibitors become available to the market soon. Has anyone here managed to join a Phase 3 clinical trial?

On wednesday I awoke to a pain in my lower back that made it difficult to sleep. By end of day, it was painful to take deep breaths with my right lung so I went to the ER.

After a bunch of tests they determined via CT scan that I had bilateral pulmonary emboli. I started on Apixaban immediately and will be going to a Thrombosis clinic on Aug 26th.
The first night was painful to sleep, but now I actually feel pretty good and my lung does not really hurt anymore.

I am 49, very active/healthy, and had no known provocations for the clots. A few days prior, my left calf muscle had been sore (feeling a bit like cramp). There were no other signs (no swelling, redness) but I do wonder if that may have been a leg clot that eventually moved into my lung? About a month earlier I had twisted my left leg in a weird way on a chairlift and so that is the only thing I can think of that may have possibly caused an injury.

I live in North Vancouver and mountain bike almost daily. I am pretty devastated because I will not be allowed to bike for at least the next three months while I am on Apixaban.
What I really fear, though, is that since there was not really a clear provocation, I may be doomed to permanent anticoagulants, which would mean giving up MTB forever and any other of the fun sports.

I obviously need to wait until the Thrombosis clinic does a more thorough investigation, but I am trying to be realistic about the possible prognosis.

I feel like one of the only glimmers of hope is if Factor XI/XIa inhibitors become available to the market soon. Has anyone here managed to join a Phase 3 clinical trial?