Hi all! I’m currently only on 81mg aspirin daily but my hemotologist is considering starting me on HU. I’d like to hear from people how they tolerate this medication and the side effects. In particular, GI symptoms, hair loss, fatigue???? Thanks. 👍
Hi! I’m really hoping to hear from folks >60 who’ve had little to no impact from this disease. I probably wouldn’t be so freaked out, but when something is classified as cancer it grabs your attention. My hematologist said if you’re going to get cancer, this is a good one to get. My allele is pretty low (6.25) and so far my platelets haven’t gone above 460000 as far as I know. I’d love to hear from some older folks out there who are living long, healthy lives.