u/ObserverYS

Fibroids + endometriosis

Hi gang!
I’m 32F diagnosed with multiple fibroids in November after experiencing persistent pelvic pain, heavy period and horrible cramps.
My doc put me on mifespristone for six months. Got a scan last week that showed no meaningful shrinkage. But scan now shows signs of endo and adhesion of ovaries and backside organs, which explains my chronic constipation and distress before and during menstruation.
Doc advising myomectomy and lapro clearing of endo plus a hysteroscopy. But also says that there’s 50% chance of it coming back. She’s also prescribed some hormonal meds elagolix that can cause hot flashes and loss of bone density before the surgery and also after surgery.
I don’t want to medicate anymore. The six months I was on mifes, I was having hot flashes and losing sleep and my immune system took a big hit. I would choose pelvic pain a few days a month over losing sleep every night.
I want to do the surgery though if that means there’s a 50% chance it will not return.
Anyway wanted to ask if there are other ways to manage fibroids and endo post surgery without medication? Is anyone on elagolix? Is it worth the trouble?
I’m not sure I want to get pregnant so it’s not about protecting my fertility. .

reddit.com
u/ObserverYS — 1 day ago
▲ 5 r/adenomyosis+1 crossposts

Fibroids + endometriosis

Hi gang!
I’m 32F diagnosed with multiple fibroids in November after experiencing persistent pelvic pain, heavy period and horrible cramps.
My doc put me on mifespristone for six months. Got a scan last week that showed no meaningful shrinkage. But scan now shows signs of endo and adhesion of ovaries and backside organs, which explains my chronic constipation and distress before and during menstruation.
Doc advising myomectomy and lapro clearing of endo plus a hysteroscopy. But also says that there’s 50% chance of it coming back. She’s also prescribed some hormonal meds elagolix that can cause hot flashes and loss of bone density before the surgery and also after surgery.
I don’t want to medicate anymore. The six months I was on mifes, I was having hot flashes and losing sleep and my immune system took a big hit. I would choose pelvic pain a few days a month over losing sleep every night.
I want to do the surgery though if that means there’s a 50% chance it will not return.
Anyway wanted to ask if there are other ways to manage fibroids and endo post surgery without medication? Is anyone on elagolix? Is it worth the trouble?
I’m not sure I want to get pregnant so it’s not about protecting my fertility. .

reddit.com
u/ObserverYS — 1 day ago