How to decide the which clinical trial to pursue?
My dad (64) has a newly diagnosed IDH wild-type unmethylated glioblastoma (diagnosed March’26) . He had surgery, completed radiation with temozolomide, and has now started adjuvant TMZ. Like many families, we’re trying to look ahead and understand what options might be available if we ever need them.
I’ve spent weeks reading about CAR-T, dendritic cell vaccines, oncolytic viruses, and other trials, but the more I read, the harder it is to know what to focus on.
For anyone who’s been through this:
How did you decide which trial to pursue?
Which centers were the most helpful or gave you the most confidence?
Did you start contacting trial centers early, or wait until recurrence?
Is there anything you wish you’d known before starting the process?
We’re based in India but would travel if it meant access to a promising trial. I’d really appreciate hearing about your experiences or any advice you have. This diagnosis has been overwhelming, and I’m just trying to make the best decisions for my dad.