is my hip dislocating? doctors appointment
Hey,
im from germany, 20 years old and was hoping to get some other povs on the things i experience.
to clear things up from the start; i have no official diagnosis of heds or eds or anything of that sort but i have an official autism and ocd diagnosis, as well as endometriosis and my therapist suggested that i show signs of fatigue.
i experience regular joint pain, especially my knees, hips, fingers and wrists and i do definitely overextend my knees, fingers and wrists.
i also experienced what i wouldve called a (sub)luxated hip multiple times by now. i know about snapping hip syndrome but this just feels different for me and i do know what a dislocation/subluxation looks due to my girlfriend, who can subluxate her shoulder on command ever since she could think. the feeling i get when i "subluxate" my hip, literally feels like my thigh bone is slipping down inside my body (this only ever happened when sitting) and it hurts immensely, like close to crying (even tho i have a very high pain tolerance usually). then i have to very carefully "puzzle" my bone back into my hip and i can feel it "pop back in". during those "subluxations" i cant move my leg (except like my feet but the pain is too much to even think about that in those moments anyways) and have to use my upper body and arms to make things right/work again.
(purposefully put stuff into quotation marks here, to indicate that thats only how i describe it, since no professional has agreed on that yet)
since ive been young i had very bad back problems (also mainly due to my big chest) and when i experienced excruciating pain when i was 14, i made an appointment at the orthopaedic doctor for the first time. the waiting time was six weeks and by the time i had my appointment, the pain was already gone (it was about two weeks of not being able to put my body upright without crying in pain, i could barely bare the ´way to the toilet, let alone sit to eat or drink something). the doctor then told me i was too young for back problems and sent me home with the words "just take pain meds next time". mind you i was overdosing my pain meds and it did nothing against the pain.
this event happened a second time around the age of 17 but i was too traumatised from the medical gaslighting i experienced to go back to a doctor and just bared it at home.
so finally i decided to get a boob reduction a few months ago and for that i needed to see an orthopaedic doctor again. i went there, told him about all my problems, about the medical gaslighting i experienced in the past, how that plus my autism scared me of attending a doctors appointment again, how i struggle with communicating pain properly etc etc. he took a look at my pack, diagnosed me with scoliosis without mentioning it to me (i only saw it on my papers afterwards) and then wrote me a paper for my insurance (breast reduction) and some insurance payed strength training for my back.
i asked him to please also check my knees and hip because i have regular pain and my knees overextend (showed him that). he made me lay down and he then moved my knees into every direction except the one they overextend to (idk if that is normal but it seemed odd). he also only moved my hip and knees about 70% of what they are capable of moving into all the directions (again idk maybe this is normal) and then said my hips and knees are fine because i didnt complain about any pain while he did that. i felt misunderstood and explained what i described as "my hip slipping out" and he continuously said that hips cant slip out and that there is no way of me experiencing that. (my girlfriend also subluxated her shoulder in front of him and he seemed extremely unimpressed, just said "ok") he made me feel like i didnt know what i am feeling in my body and that my pain isnt real, so i started crying and tried to explain to him how i know the difference between snapping hip syndrome and a subluxation and that all i can tell him is that its definitely not snapping hip syndrome. he apparently felt very attacked in his job/knowledge and went "ok we are making an xray of both your hips".
when i came back from the xray he just showed me the pictures and said "see your hip is in the socket, its fixed in there, it cant dislocate, thats impossible". i just nodded, i was so done at that point. then he said it must be my sacrum hurting and that the pain is radiating to my hip and it apparently just feels like my hip is slipping out.
at that point i was fully believing him that hips dont slip out, that its physically impossible...when i arrived back home i tried to research and found a lot of proof that it does happen but still i feel unsure what to think of my experience and also the doctors appointment :/
i felt so down i tried to replicate what i experienced in my hip in the past and couldnt fully do it, what i achieved tho is that i (as a non professional, so idk maybe im seeing nonsense) can see my hip weirdly "popping out" and it "removing" my hip dips fully, like i can feel the bone wiggling "in and out" a bit (this is under less pain then what i meant to describe to the doctor tho but still somewhat painful and connected with immobility while in that state).
my bad for this incredibly long and probably clunky to read post but i really hope to get some new input on here
thanks to everyone in advance <3