u/Ok-Grab-428

Hi! I’ve been on IVIG 40mg 1x four weeks for about 18 months. I’m 42 and have PI so it will be a lifelong treatment. I tried SCIG for a few months and really didn’t like it for lots of reasons, I’m happy with IVIG.

BUT my veins are trash so IVIG and bloodwork always take multiple sticks. I go to an infusion center with great nurses, but we’ve only been able to use the tops of my hands. They’ve told me part of the problem is scar tissue building up on the few veins we’re using.

My needle anxiety is getting bad, so I asked for a referral to get a port (central line) this week. Can you tell me about your experience if you have one? Good and bad and everything. I’m nervous but hopeful for some relief!

Hi! I get 1x monthly IVIG for primary immunodeficiency (SAD), I’ve been on it for a little over a year. Overall my health has really improved, but after a nasty bug a few months ago I’m getting “breakthrough” sinus infections right before my infusions.

We’re raising my dose from 30g to 40g. I know it will help but I’m nervous about increased side effects.. I already hydrate like crazy, take premeds and get IV fluids but I usually have a 2-3 day recovery with flu-like symptoms. Has anyone here had a dose increase before? How were the side effects? Does anyone take a lumbar pillow for those dang infusion center chairs? Dreading a longer infusion time lol. Thanks in advance :)