u/Ok_Cheesecake9502

Recurrent swelling around surgical site after craniotomy / during RT

Hi I have a Left frontobasal meningioma, and I’m now about 3 months after craniotomy with complete removal, Also I’m undergoing RT and 20 out of 30 radiation sessions done till now.
Yesterday around my surgical part- left temple, cheek, eyelid- became swollen like bee sting or bad allergic reaction. I’m not allergic to anything and had no other symptoms so I just put some ice pack on it and it came back normal
And today after working out like walking a bit and light weights, same part got swollen again. After quick shower it became a bit better now
I can’t figure it out what caused it. Has anyone experienced those symptoms and figured out reasons?

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u/Ok_Cheesecake9502 — 3 days ago

It’s hard to make plans after finding out a tumor.

Hi I haven’t been in English culture so my words might be awkward.
I’m in early 30s and found out I had a meningioma so that I had to get a surgery. Doctor said 90% of cases are benign and happens usually in 5060 yo. But my tumor was grade 2 and pathologically it was like quite aggressive cells and it demands a radiation therapy too.
I’ve researched it and it’s quite highly recurrent tumor.
Thank god that I had no complications after surgery and doc removed my tumor completely but since I’ve known about my tumor and chance to be recurrent someday It’s hard for me to make any life plans like working, dating or big decisions. I’ve had to pause my work career which is physically demanding and shift work that I’m not sure it’s okay with tumor recurrent possibility and my dating or anything because of my physical conditions. I feel like I have some obstacles in building my life forward. I’m trying to be positive and focus on good results but sometimes I feel low and get scared. How you guys stay positive and avoid to think about bad things? There are no meetings or mental supports in my country so I have to deal with this feeling by myself. I have good support around me but I think they can’t fully understand my emotions. My radiation therapy will start soon and I’m scared of it. Maybe that’s why I feel low tho It’s really tough journey, everything is so new to me and not joyful haha 😂

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u/Ok_Cheesecake9502 — 2 months ago