u/Ok_Discussion1889

▲ 1 r/Endo

Endometriosis or something else?

Hello I am currently scheduling appointments with specialists to try to get diagnosed and get help. Wanted to generally ask if these symptoms could be endometriosis related as I had gone to a general doctor about 1 year ago but they didn’t do further testing to confirm/deny endometriosis. I’m a female age 21.

Ovulation:
Burning pain in breasts, especially left breast and is deep in tissue. Can burn for 10-30 minutes to the point I’m wincing and just clutching my body.

Period:
Overall heavy flow, can go through super max tampons in a few hours. Always need to wear tampons and pads combined to not bleed out. Pass several large blood clots often 1.5-4 inches.

I have about 1 episode per menstrual cycle:
Extreme hot flash comes on, sweating, shaking, dizziness sometimes even fainting, running to bathroom, combined bowel/diarrhea movement, extreme constant pain for entire episode to the point I cannot move and lay on restroom floor, nausea to the point of needing to vomit.

Episodes last approximately 1-1.5 hours and only after am I able to move but extremely exhausted.

Tylenol seems to do nothing for my pain, ibuprofen sometimes helps.

Outside of these episodes, the rest of my period is “normal” with some more painful back cramps, sleep deprivation, and heavy flow.

General info:
General fatigue/exhaustion (may be stressed related)
Anemic, last ferritin level was 9 ng/mL other labs seem relatively normal

Please let me know if anyone has similar symptoms?? Or any other recommendations on what this could be. I can’t tell if this is normal period symptoms or not. I do not seem to have the other symptoms people with endometriosis have (painful intercourse, infertility, pain in peeing/bowel movements normally). My old doctor told me my problems are just due to anemia/normal period so not sure what to do. That being said we did no endometriosis specific tests.

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u/Ok_Discussion1889 — 24 hours ago

Endometriosis symptoms or something else?

Hello I am currently scheduling appointments with specialists to try to get diagnosed and get help. Wanted to generally ask if these symptoms could be endometriosis related as I had gone to a general doctor about 1 year ago but they didn’t do further testing to confirm/deny endometriosis. I’m a female age 21.

Ovulation:
Burning pain in breasts, especially left breast and is deep in tissue. Can burn for 10-30 minutes to the point I’m wincing and just clutching my body.

Period:
Overall heavy flow, can go through super max tampons in a few hours. Always need to wear tampons and pads combined to not bleed out. Pass several large blood clots often 1.5-4 inches.

I have about 1 episode per menstrual cycle:
Extreme hot flash comes on, sweating, shaking, dizziness sometimes even fainting, running to bathroom, combined bowel/diarrhea movement, extreme constant pain for entire episode to the point I cannot move and lay on restroom floor, nausea to the point of needing to vomit.

Episodes last approximately 1-2 hours and only after am I able to move but extremely exhausted.

Tylenol seems to do nothing for my pain, ibuprofen sometimes helps.

Outside of these episodes, the rest of my period is “normal” with some more painful back cramps, sleep deprivation, and heavy flow.

General info:
General fatigue/exhaustion (may be stressed related)
Anemic, last ferritin level was 9 ng/mL other labs seem relatively normal

Please let me know if anyone has similar symptoms?? Or any other recommendations on what this could be. I can’t tell if this is normal period symptoms or not. I do not seem to have the other symptoms people with endometriosis have (painful intercourse, infertility, pain in peeing/bowel movements normally). My old doctor told me my problems are just due to anemia/normal period so not sure what to do. That being said we did no endometriosis specific tests.

reddit.com
u/Ok_Discussion1889 — 24 hours ago

UPENN coordinating official

I’m switching institutions and have some questions for my new CO. Does anyone know the email/name for UPENN’s coordinating official?

reddit.com
u/Ok_Discussion1889 — 22 days ago