▲ 3 r/marfans
Hoping to meet other people who also have marfans
I’ve never met anyone else with marfans and I also don’t have any family members that have it. I have the de novo marfans so I’m the first one in my family to have it
I’ve heard about the marfans conference but I don’t live in the us and I think there’s something on discord but I don’t use that app
Are there any other ways? And is anyone else also hoping to meet more people with marfans?
u/OpeningMaize8089 — 10 days ago