u/Ordinary-Pop4416

I’m in day 3 of a PEM crash, but my body and brain won’t let me get any sleep. That tired but wired feeling has me all messed up.

It’s so unfair how when we need sleep the most is when we can’t get any (or enough).

I have severe fatigue and brain fog but my brain is like a frozen PC that refuses to go into sleep mode.

Yes I’ve tried literally ever supplement, sleep med, CBTI, etc etc, but when my flares peak nothing works. Nothing. I wish there was a clinic that I could go to get a 12 hour propofol nap with an iv hydration drip.