u/Outrageous-Shirt-822

Hi! I’m a college student living in a shared apartment with three other roommates. They’re all pretty chill and I’m very close friends with one of them. I spend most of/if not all of my time in my bedroom. I also have my own bathroom with a shower. I’m wondering what I can do to make things more accessible in my environment for bad days or crashes. Or even just in general. I’m pretty mild/moderate, but on bad days it’s hard to shower, walk, hold conversations, eat (hard to get up to), etc.
right now I have a little station on my nightstand full of meds, protein bars and things like that. I also keep my cane near my bed. I don’t think there’s room in my bath for a shower chair btw.

That’s all, let me know if you guys have any ideas or what’s helped you!

For the past two ish years, maybe even longer, I’ve been getting a sort of euphoria/adrenaline rush about 30min to an hour after waking up every morning. I thought it was my ADHD meds, but it happens even when I’m not on them. I’ll always have this rush with a spiked heart rate and then after about 30min to an hour I’ll get suuuuper tired (probably coming down). Is this an ME thing? I’m still trying to distinguish my ME from the rest of my life and other disorders.

is it possible to just have a really bad symptom day but not be crashing? Yesterday I felt so awful it was hard to think or talk or type, but I woke up today feeling pretty good.

Hi! I’m not sure if that’s what this is, but I was officially diagnosed today and can’t help but feel like I’m making it up. Being told I can’t work out a lot and noticing that I’m more functional when I’m mostly house-bound is a hardddd pill to swallow. I keep thinking to myself that I’m just overthinking it all and that if I just become more active I’ll be fine and feel “normal”. I’m not sure how to word it all. I have this big fear that my doctors are missing something and that I have something else, not this, and that I’ll spend the rest of my life accommodating to an illness that I “might not even have” even though I’ve been professionally diagnosed. I know many people don’t have the opportunity to be diagnosed, and I’m so very grateful that I’ve been able to, I just get worried because it’s such a life-changing thing. What if I’m missing out on everything because of a misdiagnosis? All of my symptoms line up, etc. and I know that it makes sense, but I guess this is some sort of denial. Like I’m desperate for something to tell me that my life isn’t going to have to change, that I’m not going to have to spend my life tiptoeing around my own body and calculating my energy as I have been. I’ve had to be so careful just to function normally, and a part of me is so fucking desperate to be told that it’s temporary, that I’ll be cured and go back to “normal”. I use a cane to get around if I leave my apartment, and I still sometimes push through without it from embarrassment, in fear of people seeing me because I “don’t actually need it the way others do”. I feel that way with most of the things I do to aid my symptoms, that I’m not really a part of this community and I’m just making it up or I’m a hypochondriac. My biggest fear though is the misdiagnosis and missing out on my life by treating something I might not have. I spent a lot of time just assuming I had ME until I was diagnosed today, but the actual diagnosis changed many things like how I feel about it. At least before, I could’ve told myself that it might not be ME, maybe something easier. But no, this is my life now. I know that recovery is possible, it’s just hard to feel hopeful about that right now.