u/P02223325

Pregnant and looking for advice re meds

I am in Scotland so was hoping to speak to other ppl from the UK as I know the prescribing guidelines so different around the world BUT am also keen to hear from women who have stayed on sodium oxybate (Xyrem) during pregnancy.

I am in the very early stages of pregnancy, I found out 5 days ago.
Since then I have reduced my medication (was on Methylphenidate 5mg, 10-15mg per day, sodium oxybate 7g total at night)

I haven’t had any methylphenidate for 2 days. I have put my SO down to just the one dose of 2.25g however my nighttime sleep is absolutely horrendous and I am waking every 15-30 mins when the SO wears off. I’m getting about 100 minutes sleep at once from it, but then it’s a bit like being tortured until 5am when I finally get back to sleep for a longer stretch . Insomnia was always my worst symptom pre meds.

I am falling asleep every few hours during the day which isn’t ideal but as I WFH I can probably deal with this.

What I can’t deal with is the thought of being unable to sleep longer than 15- 30 mins at a time overnight for the next … year at least.

I know my consultant is going to tell me to stop everything and my preference would be to not take anything at all but jeez is this it? Is there nothing else? I don’t even think I can have a cup of camomile tea 😭

Has anyone in the UK stayed on SO but at a lower dose?
Or anyone who stayed on it but lived elsewhere, how was your experience? Was your baby ok?

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u/P02223325 — 1 day ago