TSH still not suppressed 10 months post op
Hi all - I had a total thyroidectomy and central neck dissection last August for PTC with lymph node metastasis. We knew I would need RAI due to BRAF+ and the size of my tumor (2.7cm). My surgeon put me on cytomel post op, but once we realized it would be a few months until they could get me in for RAI, my endo put me on 112.5 mg levo in September last year. I did RAI in November (thyrogen injections) and have had my TSH checked every 6-8 weeks since. I have had my levo dose increased to 125, 150, 175, and now 200 and my TSH is still at 9.5. I’m taking it consistently on an empty stomach first thing in the morning. My endo switched me to levoxyl instead of generic to see if I absorb that better, and is running a celiac screening too, but has anyone else had it taken this long to get their TSH suppressed? My T4 is normal (ranging from 1.2-1.4) and I weigh roughly 160-165lbs. My endo said this is already a really high dose for my size so something else must be going on to impact my body’s ability to absorb the levo. I thought I would have my dose more sorted out by now!
The good news is that since I had such a high dose of RAI (177), my thyroglobulin was completely non detect a few weeks ago and neck US was unremarkable!