u/Perfect_Papaya_9381

Getting ready to receive my first FOLFOX treatment. Got the anti nausea meds, steroids already. Then two hours of oxaliplatin and then the 48 hour bag of the 5-FU.

Remember when I said they had said it was not stomach cancer? Well it looks like it originated in the stomach. After my last biopsy, they went deeper into the mass in my stomach and it looks malignant. Don't know the stage of that one yet. I do know the lining of my digestive system is stage 4. But hopefully this is the answer to where the cancer originated. I still have to do my PET. Could be wed depending if I can do it with a chemo bag.

Anyhow, I am still pretty nervous about this chemo. 😬 hopefully in a few days I can come back here and let y'all know how it went.

Good luck to all the folks going through their first time . .....🫶🫂

I know everyone is on different drugs than I will be on and that everyone is different in how their bodies react. I just want to hear/read people's first time.

I start my first treatment this Thursday may 14. I will be on FOLFOX for stage 4 peritoneum cancer. (Still have yet to find the main source. Looking in to my small bowel on wed. And PET on the 20th) I am deathly scared of the side effects during the treatment and after. I will go every 2 weeks and carry a bag attached to my port for 48 hours. (Not entirely certain how that works) Still I want every drug to help stop nausea and or vomiting. Currently I am in almost constant nausea due to the cancer. I would die if it got worse.

Thank you for sharing 🫶💞

Still don't know where it is originating from but I do have 2 small lesions on liver and a nodule on the lining around the abdomen are. (I think that is the word she wrote. I can't read it lol. Starts with a 'p') Scheduling another endoscopy and scheduling a PET scan. Eventually.

Every two weeks I will go in for chemo. 3-4 hour treatment, then take home a bag of stuff for 48 hrs return to yet it unhooked. Then two week later do it all over again. Hopefully during these treatments they will find out where this cancer is coming from.

My question: does anyone use or have done this treatment or something similar? Was curious to your experience. It just seems like a lot of chemo. Names of the meds are oxaliplatin(eloxatin) and fluorouracil(adrucil,5-FU)

Dr thought bc of the mass found at the end of my esophagus and beginning of stomach, these is what caused the cancer in my abdomen wall lining. Nope. So I am back to going the route of regular chemo that will take its aim at anything and everything I guess. She wants to do some more testing since we couldnt pinpoint it with the biopsy. Just got my port in. This is real. I mean it was always real it is just I thought we found it. Where could have the cancer originated? All my organs have been checked out. Over and over again. And once she does whatever testing on Wed it will still be two weeks before results come in. Now I am back to being scared. Cos idk where it is. When they the thought the mass in my stomach was cancer, I felt, idk, just better. Now..? Back to that unknown feeling.....ugh!!! If you read this thanks for listening.

I don't know what my cancer is named and I honestly don't care. My dr wants to immediately start treatment and okay I have no choice. Anyhow my concern is doing this chemo thing. I of course don't know how long my treatment will be but I am so afraid of the side effects of chemo. Is it different for everyone or does basically everyone basically get the same side effects. We have finally found out the cancer originated in my stomach. They only knew I had cancer bc my abdomen was showing inflammation in some lining of the entire gut area or something like that but just couldn't find where it started. So yea it has already spread and I have read that isnt a good thing. 😕