u/Personal_Painter694

I’ve been reading about mind-body for a few days, and I feel hope again.
I’m having a severe relapse since one month after one year of «better », 2 years long hauling Long covid in total.

I lost my strength over the course of one week after pushing physically very hard in the heatwave and catching a good fever. Slowly, had trouble to walk and put one feet after the other. Had to be put on sick leave and got very panicked and devastated as I didnt think it was possible for me to relapse this low after improving.

My primary symptom is extreme weakness, especially in legs, pressure in muscle, shaking when standing. I feel like my legs are made of wood.
This is the only thing that stops me from believing it’s my brain and nervous system sending and doing this.
Medical exams are all good.

I’ve been bedbound before but different symptoms.

Has anyone recovered from muscle weakness ?

I’m 23 living in Paris, actually experiencing a severe relapse after one year of improvements and living a semi-normal life (working 39h/week). Trouble walking, extreme weakness, fatigue.
I’m on sick leave for a month but I’m scared I’tll be months of sickness until I get better.

Has anyone in France have been having some sort of treatment ?
My primary care doctor doesnt believe me.
I did every medical test possible in the past 2 years and I am physiologically in perfect health.

During my 2 year long covid, I’ve only been prescribed respiratory reeducation, that didnt help very much.

I know there are 2-3 specialists in France because they are on Doctolib..

Anyone?

2 years exactly into long hauling. First year was hell, bedbound to housebound, didnt work for a year. Then I got better, and started working one year ago till now and was getting better and managing symptoms. Life was beautiful again

These past weeks I pushed myself a lot, but like I said now îm managing symptoms.

Heatwave, stressful job, legs started to feel heavy then caught a weird flu that lasted a day with a bit of fever but extreme pains in the lower back area.

And now I’ve been unable to walk, legs are tight and heavy, I struggle to get out of bed because of weakness. Dizziness and awful GI issues. Tight neck and pressure in head.

I did nothing for five days hoping it would pass. And now I feel worse and Im on medical leave cause Im like in the first days of long Covid, if not even worse

Blood test came back normal

Im incredibly panicked cause I don’t know what is going on and I feel like Im going to be like this for months. I am really traumatised from the first year of long covid when I felt like dying.

I’ve been having insomnia these last few days, waking up with trouble breathing and sore stomach.

Im completely in shock of the severity of symptoms, because I was living a near normal life one week ago and now i cant walk.

Did anyone have a relapse this severe overnight?

Caught covid 1st of july 2024 and was bedbound from september 2024 to june 2025.
Who’s with me ? ( english is not my 1st language)
Ive been improving since a year. It is very much by waves.
Compared to the first year where I had been progressively getting worse and bedridden, I now work 39h a week !

But.. it is so hard on my body. I have all the muscles I need but they dont work. Such a mystery illness.
I’m still struggling every day and I’m nowhere near where I was before. I’m 23 yo and I had an athletic form before I caught covid.
Since March 2026 ive been having setbacks, getting sick, catching every cold I could catch, really set me back. I had days where I felt like the beginning of long Covid which put me in a terrible panic mode.

Right now I’m sick with a terrible flu and pain everywhere because I worked a week under 45degrees because my employer refused to close the store I am the manager at. (France heatwave) and Im paying for it right now on sick leave.

They know what Im going through with long covid but they dont really understand cause it’s not visible and I look very healthy and athletic still, I think they just forget, and I think sometimes I choose to forget too. I still did not accept that I’m like this now.
I’m very hopeful that I can get better and that I’m not stuck like this forever because I’ve had so much improvement since 2024.

This has been such a long process that I’m always saying to myself « it’s LONG covid. You have to wait a LONG time. Be patient. Dont push »

Right now I’m so fatigued that I struggle to walk and stand. But If I sleep 3 more days Ill be able to get back to work.

I know this is not a recocery story yet. But 2 years ago, I would have been so reassured if I knew that I would get back to work again, even if it’s not the same anymore.

Please share your stories of improvements !