u/Pleasant-Performer-2

Tested negative, privileged question (content warning: I would have been annoyed reading this when I was at risk)

Has anyone here tested negative after being at risk for a long time? I was at risk for 10 years and tested negative this spring. I know this is an extraordinarily privileged position to be in and I deserve any negative comments that come my way asking this, but I sometimes judge myself for not get tested earlier. I lost so much time to thinking I had HD and planning accordingly. Whether you tested positive or negative, how did you come to accept your timeline?

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u/Pleasant-Performer-2 — 4 days ago

▲ 6 r/Huntingtons

Advocating for PGD-IVF coverage

Does anyone work for a healthcare system and get IVF-PGD (pre-implantation genetic testing) covered by their health insurance? I'd like to advocate for my employer to cover it and it will give me more of a leg to stand on if I can find peer institutions that are already doing this

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u/Pleasant-Performer-2 — 8 days ago

▲ 4 r/Huntingtons

Hi everyone! I'm from an HD family and am working with a group of volunteer patient advocates called HD-PACE. We're trying to gather experiences that patients and families have had at HDSA Center of Excellence sites. Would you fill out our survey? https://hdpace.org/

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u/Pleasant-Performer-2 — 1 month ago