u/Pleasant-Two-8754

▲ 1 r/Endo

Should I be seeing a gynecologic oncologist instead of an endometriosis specialist for endometrioma removal?

My last post contains more details but tldr; I have a mass on each ovary. The specialist said they can’t be sure if it’s malignant without surgery.

I’m scheduled to have surgery with Dr. Maikis in Nashville, TN at the end of September. A friend of mine mentioned the possibility of cancer spreading with mass removal if either is cancerous, so now I’m wondering if I should have more testing and see a gynecologic oncologist to be safe.

How do they even handle that… if it’s malignant I assume they do a hysterectomy or take the ovaries at least but is that always a second surgery no matter what, unless you’re just opting to fully remove the ovaries regardless (I would prefer not to do this proactively, without knowing, or would at least like to do an egg retrieval first)

I’m feeling generally stressed about what to do.

reddit.com
u/Pleasant-Two-8754 — 1 day ago
▲ 6 r/Endo

Endometrioma vs cancerous mass. Doctor says you can't tell without surgery. Looking to hear others experiences and

I’m 33 and was diagnosed with endometriosis via surgery about 8 years ago.

Several months ago, I didn’t note when, I began feeling like there was a small or partially blown up balloon in my lower abdomen when laying on my stomach. In January I had a CT scan with my general dr that noted:

Reproductive: Within normal limits by limited CT appearance. Trace fluid in the pelvis is likely physiologic.

Last month I had an ultrasound with my gynecologist’s office and she said they saw:
Left - 4 1/2 cm endometrioma
Right - ~2.5 cm endometrioma

She didn’t seem overly concerned and said I could wait and monitor but that she could also refer me to the endometriosis specialist in their office for surgery. I decided to see her and she did her own ultrasound saying there is a mass on each ovary but without surgery there’s no way to know if they’re endometriomas or cancerous masses. And that she wouldn’t wait more than a month or two for surgery.

Now I’m feeling very worried and stressed about it. I’ve read that you can tell on ultrasound if it’s an endometrioma vs cancerous mass. Now I’m worried she can tell and thinks it’s cancer but doesn’t want to say for certain before the surgery. Is this just an anxiety ridden/baseless thought? Has anyone else been told this?

I have a baby shower I have to take a 5 hour flight for and help host in mid September. Is a surgery the second week of September (exactly 7 days before I would need to travel) cutting it too close? If so I would need to push it to October, which also makes me stressed.

reddit.com
u/Pleasant-Two-8754 — 3 days ago