u/Practical_Patience49

My quick background: I have difficulty swallowing, I choke on anything, even air haha. Pills are the worst, and lucky for me I have to take a handful of them twice a day. I had an EDG for suspected EoE. Visualization during the scope showed evidence of suspected EoE and the doctor dilated my esophagus. My biopsies came back negative, but my doc started me on omeprazole. It’s been maybe a month now. Neither the dilation or meds are helping with swallowing.

For those who have difficulty swallowing/choking, and were started on PPI’s, did they eventually help with the choking? If so, how long did it take? Is there anything else that helped with choking? This is miserable. I guess I’m just not understanding how PPI’s are supposed to help with things getting stuck at the top/back of my throat. My doc didn’t provide much info. TIA

Hi! I went to an allergist with suspicion of food allergies. She sent me to GI who ordered an EGD. Here are the procedure notes from the EGD:

Impression: - Abnormal esophageal motility. Dilated.
- Esophageal mucosal changes suspicious for
eosinophilic esophagitis. Biopsied.
- Bilious gastric fluid.
- Normal examined duodenum.
- Z-line irregular, 38 cm from the incisors.
Recommendation: - Await pathology results.

My biopsy was negative/normal

My symptoms:
-Difficulty swallowing: sometimes things won’t go down, instead they go up into my nasal cavity and get stuck. It’s only happened with meds, so after they’ve dissolved they eventually “fall out”.
-When eating or taking meds, I can literally feel everything moving through my esophagus. Many/most times, it will get stuck about the top third or half way down and just hang out there for a while. I can only take 2-3 pills at a time or I will choke.
-I do get reflux, but it’s more in the form of burping. Burping is painful, a bit acidic, and always tastes/smells like the food I’ve recently eaten. I don’t get burning pain in the upper part of my esophagus. I’ve never considered it “bad” or abnormal.
-I will have “allergic” reactions sometimes in the middle of eating. I will start sneezing violently, approx. 20 sneezes in such rapid fire that I can’t breathe. My throat gets scratchy, my eyes will water and get puffy and inflamed. My nose will be congested. Haven’t been able to find a particular food that triggers it. All of my allergy tests came back negative.
-Also, since my EGD/dilation, I feel worse. My reflux is constant. I hate eating because everything upsets my stomach and it gurgles for quite a while after I eat and I feel nauseous. Doesn’t matter what the food is.

I have my follow up appointment next week with GI. I’m worried that with the biopsy being negative, I will get the usual “don’t know what it is, probably nothing” dismissal. What questions can I ask the doctor, or what tests can i ask for to try to figure this out? Does this sound like EoE? If not any direction you might be able to point me in to bring up with the doctor? Is the EGD impression enough? TIA