u/PresentCat7405

Hello! I am 14 days post op open myo. It was originally scheduled to be laparoscopic but the surgery ended up being too complicated to do it robotically.

The mass removed ended up being 14cm and it turned out to be an extremely odd fibroid. The fibroid was filled with fluid and had metastasized into a lot of my uterine muscle. My surgeon brought an OB oncologist into the surgery to have a look because to him it almost looked like a cancerous tumor. Thankfully after some pathology it’s has so far come back non cancerous. It is still pending some pathology but it looks like a rare type of fibroid that is usually found with renal cancer.

Post op I woke up from anesthesia getting blood and on a whole lot of pain meds. I ended staying 3 nights because on my second day on the floor I needed blood again. I also woke up with a PCA pump for pain management which was great. I ended up with a vertical incision that goes from right under my belly button to the bottom of my stomach, and 5 lap sites. In all honesty recovery hasn’t been as bad as I imagined. Of course I was in pain for about a week and my surgeon sent me home with pain meds so it was well managed. Now I have minimal pain, just tenderness at my incisions and abdominal weakness which of course will take time to get back.

My surgeon has come up with my long term treatment plan. The type of fibroid he believes it is has a high chance of coming back especially because he wasn’t able to get out all of the fibroid because of how it had grown into my uterus. So for maintenance I will be going on medications to basically put me in menopause at the ripe age of 24. Once I’m fully healed I’m allowed to get pregnant and I will have to have a c-section at 36 weeks because of how extensive the surgery was on my uterus. He also wants me to see the oncologist again to help with the treatment plan, see a nephrologist for routine renal cancer testing, and to get a full genetic work up to see if there is anything else. Needless to say I will be busy with doctor appointments for a while.

All and all I am happy with the outcome, he was able to save both of my tubes and ovaries. He was also able to leave my uterine cavity alone so hopefully I will be able to get pregnant when that time comes! I am open to any questions or suggestions if anyone has had any thing similar happen to them!

Hello! I’m 24 years old and I just discovered that I have a 16cm football shaped fibroid. From the images we have it doesn’t seem like it’s in my uterus but the doctor isn’t sure how it’s attached yet (waiting on a MRI).
The fibroid was discovered on accident and I honestly haven’t had a ton of obvious symptoms. I just had my first appointment with the surgeon and he gave a lot of different scenarios and information. I’m honestly feeling a bit overwhelmed with everything.
He isn’t sure if we can even attempt laparoscopic surgery because of the size and shape, he also said depending on how it’s attached to everything it might affect my tubes and ovaries. I am terrified. I don’t have any kids yet, my fiancé and I were planning on trying next year when we were married. I just had a cardiac ablation in May and I was so excited because I’m feeling so much better cardiac wise but now I have this.
Has anyone else had fibroids removed at this age and had luck with recovery and fertility? How was open surgery recovery? Any advice or insight would be appreciated!