Has anyone been referred to the NICPM in Leeds ?
Hi
I’ve been refered here (UK) after my psychiatrist told me nothing could improve my symptoms- so not sure why I’ve been referred tbh.
I don’t have typical (Sorry I know there’s really no such thing but I don’t have seizures or movement problem) FND and apparently this place does a lot of physio etc which wont help me.
Mibe affects my digestive system and I have to have a very limited special diet which I doubt they can accommodate.
I am baffled at what theyf can do for me - I’ve been over my traumatic childhood in therapy many times and they can’t treat the autism out of me. Plus the useless psych ( who after reliving my trauma for 4 separate professionals with no help or therapy offered said “but didn’t you find it helpful ?” - no I damn well did not) said nothing can help me so maybe it’s just about learning to live with the terror and trauma its caused.
Im on a fourth - yes now a fourth- wait list for therapy but its only CBT which Won’t help as my fear and distress are not from disordered thinking but from something real - the threat from my illness which is genuinely dangerous and life threatening unlike most FND ( another battle I keep having with the ignorant medics who say “oh but it’s not life threatening“ - mine is as if I don’t treat it and it went on long enough I would die of starvation as it means i can’t eat).
And I have to pay for all my treatment- hundreds a month which I can’t get the nhs to take over although I am refered to a Gastro but not until October!