u/Proof-Seaweed9761

I’ve had three cycles of Enhertu/Perjeta and have my first ct scan tomorrow. The primary breast tumor hasn’t been palpable since the second cycle. But I don’t know how my liver mets have responded. I’m really anxious. I’m de novo her2+ ogliometastatic with only two liver mets. All the research I’ve done indicates that if I have a good response on the first scan can indicate long term NED or statistically more likely to be long term NED.
I know a bad scan or mediocre still doesn’t mean much. I am a little worried about a bad scan but given how my primary tumor responded, that is not as much of a worry.
Just had to vent to people that understand what I’m going through.

44yo and diagnosed de novo stage 4 her2+ hormone- with two liver mets in April 2026. I just started Enhertu (1dose) and my breast tumor is no longer palpable (it was 7cm.) When I tell people I’m starting treatment for cancer, I don’t say what stage I am though my close friends know and many colleagues.
I just want to scream when people reply with something like you got this, you can beat this. I know they mean well but I want to just scream at them and say there’s no beating this!!! I will not be cured, I will be in treatment the rest of my life. That might be 5 years, 10 years or maybe 20 if I’m lucky. I will die from this someday. But alas I’m not going to burden that on someone who isn’t a close friend.
It’s also so hard to try to figure out long term finances to make sure my spouse and kids are set up for all what ifs. I’m hopeful with treatment but I’m also not going to be unrealistic with the entire situation.