u/Racacooonie

I’m doing really well at 9.5 months post op MACI/TTO. I was in PT today and told her I’m annoyed by the swelling to the left of my kneecap (which has come back in the last few weeks). She said to me it looks better than it has in the past, which is always encouraging. Then I told her it bothers me because I have this fantasy in my head that without it I can flex better/farther. So, of course she did a quick test on me. After the test she said, “well, your other knee is actually flexing less, so.” 😭🤣🤣 I had a good laugh and thanked her for giving me a reality check and great news. I said, well we KNOW my head is full of fantasies, so this is no surprise. And she reassured me that it’s common to have mental blocks around longstanding injuries and not always know what we are actually capable of. I appreciated that reassurance. It’s such a happy moment, though, to know that despite challenges and ups and downs and noticeable swelling my knee is still doing really well.

She also did another running form analysis and we’re learning that my MACI leg looks even better than my other leg! My overall form is pretty solid, which is also reassuring. I’m working on slowly building up my mileage. My current longest run is 4 miles. I’ve come so far and also feel I have so far yet to go to be where I want to be. But overall I am really, really grateful.

This return to running season has been by far the most challenging out of my many injury and surgery rehabs. Mentally, it’s felt incredibly difficult at times, but I’m starting to feel glimmers and have hope that I’m breaking through.

My gyn just diagnosed me with adenomyosis via message in MyChart. I asked what treatments are available and the medical assistant wrote back hysterectomy and symptom management and that we should do symptom management. I don't have a follow up appointment and was told to follow up "as needed."

So far, symptom management was ignoring my reports of extreme pain and only recently giving me prescription Naprosyn and Flexeril. Both of which are inadequate. I'm uninterested in a hysterectomy as I'm 44 and have osteoporosis. I'm already on HRT for bone health benefits.

Can anyone who's been diagnosed with this before provide me with some clarity or validation? Is sucking it up until my cycles stop really my only option or should I push for a Mirena or something else? I just need help getting through the hell that is day two of my periods. I've taken stronger pain killers for it (left over from ortho surgeries) and it barely touches the pain.

Updates: I was not informed and I appreciate everyone educating me on options and types of surgeries. Thank you kindly! I appreciate every one of you. This is all new to me.