My love hate relationship with prednisone
Feeling a bit down. I’ve been on prednisone since shortly before my diagnosis 8 years ago, mostly at a 5mg maintenance dose. Started flaring on the 16th and I upped my prednisone to 10mg. This usually settles things down and I can taper back to 5mg a week later. This one is being stubborn. Woke up today feeling like I did a full body workout at the gym and everything just hurts. I emailed my rheum to loop her in and have it noted in my file if I ever need to go on disability. She said to bump to 15 for a few days and then 20 if things don’t settle. I’m frustrated. I’ve been on holidays the last week and a half and haven’t been able to do much of anything for the majority of it.
I’m fine being on prednisone because it helps me function in life, but it always feels like such a set back when I have to bump higher than 10. I also haven’t had a flare like this in quite a while. I’m grateful things have been good but a flare just sometimes jolts me into the reality of having Lupus (if that makes sense).