u/RelevantFeed495 — reddlx

Just a lot of questions

I’ve been reading people’s post about how Testicular Cancer could be decided in the womb. It got me thinking about how much research focuses on how to detect it before it happens. Got me asking too many questions..

We know how to treat it and hopefully cure it when the lump or pain or other symptom appears but where are we are in finding it before then?

We all know the stats of the typical age range and survival rates at certain stages etc but what do we know about type-age range-tests that can be run to get ahead of the disease?

What research is on going for prevention?
What research is on going for after effects?

If we aren’t able to get to it early why does every high school and college give out shower cards to give self exams ?
Mandatory health was a class back in my day but we didn’t even touch on the topic.

This was a lot of thoughts late on a holiday weekend, I hope that some people have answers and insight into the research. I obviously am very invested in this topic as all of you probably know but I’m just trying to push for more so that guys don’t have a bad journey. If we can’t get to it early we need to focus on hitting every age group in the age range. This isn’t an ad for any particular organization (I love them all) but it’s 2026 and it is a powerful time that the word can be out. I’m going to keep advocating and helping guys every day but I’m going to also keep asking the questions so we can make real progress. Please let me know if you have insight into anything, I love to learn about this!

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u/RelevantFeed495 — 1 day ago

▲ 23 r/TesticularCancerOrg+2 crossposts

Caregiver love

As I lay down feeling somewhat helpless after my spinal tap today I find myself pretty lucky to have an incredible support system starting with my wife. It is so important to have this in your journey that I find myself wanting to help everyone as much as possible.

I think the survivors guilt can be expanded to support guilt in my instance where I can be of help with my TC knowledge and as an extra support system to any warrior in need.

If you have a great caregiver or wider support system show them a lot of love. If you don’t have that reach out I can guide you in your journey and connect you with someone with a similar diagnosis.

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u/RelevantFeed495 — 12 days ago

▲ 14 r/testicularcancer

My Story and My Why

You probably have all seen me on here especially if you've posted in the last couple months. I want everyone here to feel seen and not alone as this Cancer often unfortunately is a very lonely disease. I learn more every day from everyone's different situations and stories. I try to get involved with various organizations as they help survivors, caregivers, families and community members. Locally I have been involved with Coffees for Cancer (my very small non-profit) and Kickin Cancer. On a more national level I have supported many organizations from American Cancer Society, Expect Miracles Foundation and Stupid Cancer. There are also Testicular Cancer Non-Profits that do great work in this space namely the big 3 of Testicular Cancer Foundation, Testicular Cancer Awareness Foundation and TC Society.

While I continue on my path to hopefully one day being healthy I take opportunities to tell my story even though we don't know what the current health ailment is 100% I have suspected Multiple Sclerosis which I have come to terms with. I go to Neurology on June 18th and hope to get some answers. Currently I am on 6 medications for pain in my back, remaining testicle and down both of my legs. I have to self-catheter 2-4 times a day because my bladder doesn't empty. However I find my passion of helping others outweighs any health burden I am undergoing. I hope that I am helpful in this community and others around my state and country. I will drop links to the causes mentioned above and some links to where I have told my story most recently here:

https://app.testicularcancer.org/story/happy-birthday-heres-a-lump

Participated in a panel on Parenting with Stupid Cancer/Bright Spot Network in May Recording should be out soon.

Slated to be a guest on "It Takes Balls" from TCAF recording this week and out in early July

Favorite Cancer Non-Profits:

https://www.coffeesforcancer.com/

https://kicking-cancer.org/

https://www.cancer.org/

https://expectmiraclesfoundation.org/

https://stupidcancer.org/

Testicular Cancer Orgs

https://www.testicularcancer.org/

https://www.testicularcancerawarenessfoundation.org/

https://testicularcancersociety.org/

My story and past podcast appearances:

https://stupidcancer.org/my-testicular-cancer-journey-with-a-dose-of-humor/

https://youtu.be/CIyeyVpIp5w?si=LoswsFiEiNnJiwHc

https://youtu.be/cyCRqEvhMQM?si=p4-R6UxyVLzRebCP

https://youtu.be/6JO4VpAvt0c?si=TgpI2qmAjuEWc2SO

I wish everyone on here good health and hope that if you read or listen to my story that it may provide comfort or otherwise speak to you. I make no money off this passion, I only do it because I love to serve the TC and Cancer Communities and I will continue to press on until I can't. Thank you everyone for letting me be me.

u/RelevantFeed495 — 28 days ago