u/Remarkable_Ad_2030

Hello all, my partner of 6 years (24F) recently found out she has a 25% chance of getting HD.

She recently decided to get tested and we’re waiting for her first appointment. I know nothing is confirmed yet, but some things are really eating at my soul and I’m seeing mixed information so I would really appreciate some thoughts.

Whats the test process like in Canada? Will she have to go through therapy to get her results? Any estimates of how much longer before we know the result?

Is treatment genuinely looking promising for the future when she would begin getting symptoms (maybe 1-2 decades from now)? I’ve picture and planned my life with this woman as we’ve been together for many years and we’d probably be getting engaged soon if not for this news. But I’m really scared. I want to always be there for her and to be strong, but watching her deteriorate young until she’s ultimately no longer by my side sounds like hell on earth. I don’t know if I have it in me to sign up for that…

Thank you for your time and I’m so so sorry to anyone else who is going through similar or more bleak situations. I will keep you all in my prayers.

Hello all,

My partner (24F) of 6 years recently found out Huntingtons is in her estranged father’s bloodline and decided not to get the test.

I’m really struggling with not knowing. It keeps me up at night and is really affecting me at work and at home.

Can I please get some input on what the odds might realistically be that she has the gene?

What I know:
- Her grandma (on her dads side) started showing symptoms at 42 and was in a home before 50
- Her aunt (on her dads side) started showing symptoms at 43 and I was unable to find anything else about her
- both died from the disease in their 50’s
- her father is 55 and has never been tested. But he swore he has no symptoms and he works in the oil fields in a physically and mentally demanding job.

I believe this is quite promising and that it’s perhaps lower than a 5% chance. But I’m unsure if I’m being optimistic and this risk significantly impacts my life and well being. Any estimates for her realistic risk and any prayers are greatly appreciated. Thabk you.