New to ALS forum
I was diagnosed with ALS in November 2025, just three months after my sister passed away. At the time, I attributed my exhaustion to grief and never imagined it was something more.
My symptoms started with atrophy in my hands. I’ve been teaching yoga for 25 years, so I began noticing that I was losing strength in my arms. Over the past month, I’ve noticed some changes, including my legs feeling a little wobbly. I’m also dealing with a lot of thick phlegm, and certain foods are becoming more difficult to swallow. I’m grateful to have a feeding tube, which has been wonderful for me, and I use my cough assist machine twice a day.
My husband has been an amazing caregiver and a wonderful source of support through all of this. Since my diagnosis, we’ve tried to travel as much as we can, making memories along the way. We’ve been to Florida, Colorado Springs, and Montreal. I’m so grateful we’ve had these opportunities, although traveling with all the equipment I need can certainly be challenging!
I’m 74 years old and learning to navigate this new chapter of my life one day at a time. I recently joined this group, and I’ve already appreciated the kindness, encouragement, and support I’ve found here. It’s comforting to connect with others who understand what this journey is like. I look forward to getting to know you all and sharing our experiences. ❤️