u/Revolutionary-One211

▲ 8 r/UARS

Tomorrow is my DISE. If it doesn't show what I hope it does, I don't know what to do

Wish me luck. I am paranoid about getting a false negative result. I really think I have it. That's all. Had major anxiety all day because my entire life is banking on this.

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▲ 3 r/UARS

UARS and several wake ups during the night

Just wondering: I assume this impacts people with sleep apnea as well but can anyone else relate to this:

I wake up usually once a night (and now have to because of medication) but I have noticed that 2 wakeups = noticeably worse the next day and 3 wakeups= incredibly bad mental health the next day. It feels like daytime stimulants are "weird" on multiple wakeup days too

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u/Revolutionary-One211 — 6 days ago
▲ 13 r/UARS

16 years since I noticed symptoms. Absolutely no motivation to do anything ever anymore. Anyone else?

Since I have only been chasing the sleep apnea angle I am very unprepared/un "therapy'd" as it were. By the latter I mean I haven't had anyone to talk to about these issues and for years I couldn't tell if they were just in my head.

While I am awaiting DISE I believe I am at the "end game" of symptoms getting worse. I now rarely leave the house, I don't enjoy anything, and I only do things that I absolutely have to for the most part. I noticed the symptoms continued to get worse but I have to wonder what could be even worse than this now?

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u/Revolutionary-One211 — 14 days ago
▲ 9 r/UARS

Any supplements that help you get through the day with long term UARS?

Hello it's me again.

If I in fact do have UARS (I have DISE soon. Confirmed to have deviated epiglottis. Extremely likely I have UARS) I'm wondering if anyone has any ideas on supplements in the meantime to help the lethargy.

I started noticing issues in my early 20s and I'm almost 40 so it's really hard for me right now to get through the day.

In general I have noticed that the efficacy of all medications/supplements seems to be incredibly dulled the more time goes on but am wondering if there's something out there

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u/Revolutionary-One211 — 17 days ago
▲ 21 r/UARS

Is UARS always/commonly a gradual decline with symptoms?

Hello. I will keep this short but from what I can tell I have UARS (about to get DISE) and I started noticing minor issues in my early 20s but I'm almost 40 now.

Currently I don't believe my symptoms could continue to get worse because as of now I have lost pretty much the entire ability to care or be motivated to do anything. Several years ago I said to myself "if whatever is wrong isn't fixed soon I will be unable to function" and now I think I am at that point: every year aspects of my physical and mental health got worse and I believe I'm damn near at the bottom in terms of health.

Unfortunately, nobody diagnosed me despite having probably close to 100 appointments with ENTs and sleep medicine doctors/pulmonologists.

But the persistent health decline is what I am curious about: I had a six figure job and was traveling and living life to the fullest and now I sit on bed all day. Surgery can't come soon enough

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u/Revolutionary-One211 — 1 month ago
▲ 4 r/UARS

Very certain I have UARS. Xywav is helping mental health tremendously, but lethargy is now brutal. Any ideas?

I'm very aware of the problematic combination of the two but if I had to choose Xywav or no Xywav, I would have to take Xywav.

Adderall and dexedrine barely do anything to help push through the mental block. I am not tired anymore and not depressed/anxious..I just don't want to do anything. I've been lowering my doses to try that out but so far doesn't seem to do much (baseline lethargy seems to always be there)

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u/Revolutionary-One211 — 2 months ago