My physio therapist doubts me
(Sorry for my bad English) So I got a recommendation for a physio therapist because of my top surgery and I asked them on the phone if they also know about the hypermobility spectrum disorder, and they said „yeah basically yes“ so we had our first appointment and I wanted to tell about it because I kinda always knew I have this body but I just got aware it is a condition that affects a lot of things and can explain part of my chronical pain, digestion issues and bad posture.
I kinda spaced out so I can’t tell you exactly what they said, I just remember they touched my skin at my arm to see how it is stretching and said this is not so stretchy so I can’t have it (said it quiet indirect) and we just have to work on my posture. Just some days before I talked with my neurologist about it who encouraged me to go with the diagnose and said my skin at my neck looks really stretchy.
Because the physio therapist said it so unclear I feel weird because I don’t know if they actually denied my diagnoses. Since I know about the term I am super clear that I have it, there are so many things: digestive issues, my nose can be pressed in, i have the 90* thumb, I am flexible without stretching work, digestive issues, moving knees, instabile joints (especially anchle, so I fall down sometimes even with comfy shoes),waking up from numbness, neck pain, back feels like rubber that I have to put a lot of conscious work to stand still, I hate standing (feet hurt)…
I just don’t have super bendy skin and don’t get blue spots intensively (maybe it was the case before I had 400 tattoos) .
I have a big issues how to get support from therapists and doctors and this time I feel I am really feeling it is something that makes so much sense but there are so many different ways to have hypermobility? I am so tired / chronically fatigued that it is a big struggle to educate myself and find the right support, so I wanted to share to you and hope you can give me some advice how to handle my therapist situation and how to find the support I need, I am getting old and having less resources because I overworked because I thought one day it’s getting better and gaslit myself about my pain 😭