u/Sad-Environment-2535

Buenas!

Alguien sabe de qué manera te puede afectar a los ojos el consumo de este medicamento? O sea, qué se empieza a sentir? Cuándo debo preocuparme?

A veces siento que veo peor, menos nítido. Pero, los años pasan y también pienso que pueda ser cosa de la edad (tengo 29 y llevo tomando desde los 14). No quiero decirle a mi reumatólogo aún, pero sí me gustaría saber de alguien que tuvo que parar el tratamiento por eso y cuál fue la solución. También me gustaría saber si eso es reversible.

Añado que me hago análisis y pruebas de oftalmología una vez al año y nunca me han dicho nada desfavorable.

Gracias!

Hi! Here’s another lupus (SLE) patient.

I’m 29 years old, and I was diagnosed when I was 14. It doesn’t seem to be an aggressive form of lupus, but since I turned 21, I’ve noticed some pretty significant changes in my daily life because of it. My social life (which used to be pretty wild) has become quite quiet, and I’m always afraid of having a flare-up—which I always end up having. It affects me most of all in my hands (arthritis). Not a week goes by without my hands hurting. Now I feel that “fatigue” more and more—something I didn’t understand before—and, well, I notice the photosensitivity right away. I’m a bit of a high-strung person, and I’ve been trying for years to find a balance in sports that doesn’t trigger flare-ups afterward—mission impossible. I really love biking, and my routine is 30 minutes a day (max 1 hour). The pool triggers a flare-up for me (depending on my posture). Just a quick note: I was in a car accident years ago and had surgery on my legs, which has left me with some mobility issues (which also trigger flare-ups).

I’d love to hear about your exercise routines to see if I can pick up any ideas to try myself.

If your situation is similar to mine, that would be great, but in general, I’m interested in learning a bit about how people with lupus—regardless of the severity—manage this aspect of their lives.

I have a million questions I’d love to ask you, but I just joined and want to take it slow, hahaha.

Greetings from Spain