u/Sea-Shepherd-

I feel like I wanna die asap
Does anyone else feel this way?
I’m very severe

I sometimes feel like everyone else is able to do so much more than I can.
I spend all of my day lying flat in a darkened room. On a good day, I can watch about 15 minutes of YouTube and listen to a bit of music on and off. That’s pretty much it.
Every day feels the same.
Is anyone else like this? I’m barely even on my phone because I don’t have the energy or ability to use it for long. And no I don’t improve. It’s been six years like this

I’m not good at being friends with other chronically ill people.
It always ends up with people putting a lot of strain on me and seeing me as their safe space to vent.
I know this is probably a good thing, but I can’t handle it because I feel too sick myself.
It never feels like 50/50 so far.
Maybe I should just stick to Reddit subs and stop trying to make friends.
I feel very lonely but i’m obviously so ill and not a great friend when having these feelings .

I’m mostly bedbound and I’m always stressed. I live alone and don’t like it. I think my thoughts are making me worse.
I have a lot of anger
Any ideas ? I’m going insane from this day to day life.
No energy for therapists

Ever since becoming severely ill, I haven’t liked the person I’ve become.

brain fog affects me so much, and I no longer feel strong.

I’ve been reading a lot of philosophy, as well as accounts by people who survived — or didn’t survive — extremely difficult circumstances, and learning about the impact their diaries and writings had on the world. Yet it doesn’t seem to help me in my own situation.

I’m depressed and don’t feel like I’m of any use to anyone.

Can anyone relate?

I’ve become very insecure about my appearance since becoming so severely ill. I’m in my mid-thirties. I’ve never been traditionally beautiful ,I have thick dark eyebrows and I’ve never had that “cute, small girl” look.

I look very unkempt because I can barely wash myself or take care of my hair, and I don’t wear makeup anymore. I’ve also gained weight.
I never have guys talking to me on social media.
I’m just very sad about this life and how I look and all
hope you guys understand

I enjoy nothing in my life.
Why should I stay?
very severe ME here

My family doesn’t really know how to support me. I’ve been living alone with severe ME for almost 5.5 years, and it can be incredibly lonely.

I love receiving messages from people, but I don’t always have the energy to reply. Even after explaining this, they seem to think that if I don’t answer, or answer very late, it means I don’t appreciate the messages or don’t want them.

I honestly don’t know what else to say. I keep repeating myself: I need to feel the love and connection, even though I can’t always give much in return. It feels like people expect a response as proof that I care, but sometimes just reading a message is all I can manage.

And somehow, that just doesn’t seem to work. :-(
Any ideas on how to feel more connected??

I often read that people get used to being bedbound after a while. I’m five years in, and I only feel worse emotionally
it’s really taking its toll, and yes, I’ve had therapy.

So for those who have somehow adjusted to it (and I understand it’s often out of necessity):
how did you do it? What helped you?

Is there a reddit for people with severe and very severe Me cfs?

I want to crawl out of my skin bc I hate being bedbound and I’m not the right person for it . I hate being dependant of care. I hate to ask people to do things for me so I’m always risking a crash and try to do more than I can
I know I shouldn’t but this is just no life.
fuck this bastard illness. why this?
I don’t believe this is a lesson to learn
just bad luck
shoot me (lol)

Anyone else feel deprived of love and human connection?

Missing social contact, affection, cuddles, and being held. It’s an intensely lonely feeling. Sometimes I feel starved of touch and closeness, like I’m missing a basic human need.

Is anyone here so severely affected that they can only send one or two short messages a day, and spend the rest of the time resting, maybe trying to meditate a little, and doing almost nothing else at all?

I do practice forgiveness, but I still feel a lot of resentment toward family members who never really believed in my ME/CFS. They kept pushing me to do more and try harder, and that ultimately led to my condition worsening until I became bedridden.

I know they simply didn’t understand at the time. Now they do, and they visit me regularly whenever I’m able to see them. But no one has ever apologized to me.

It feels as though they gradually came to understand because of the pandemic and COVID, yet either forgot or don’t fully realize how much their disbelief and pressure contributed to my decline.

Does anyone else struggle with this?

ME Awareness day & Month feel pointless sometimes because hardly anyone outside the community pays attention. It makes me so angry. Part of me wants to shove it down people’s throats just to make them understand, but I know that wouldn’t actually help.

I hate this life
have got nowhere to vent. sorry guys.
I’m
crawling out of my skin ….with very little to no hope…..

It’s better to burn out than to fade away” was my life motto.
Then I got ME/CFS
the beast that made me fade away.
hooray 🎉

Are there other people like me? Spending the whole day doing nothing, bedridden, with just a little screen time to message, that’s all

At the end of my rope from living with severe to very severe cfs for almost 6 years. Living in a country with bad health care as well.
This is torture