u/SeaIvy

Trying this again. I am a grown adult and am getting proper medical treatment by trained physical therapists for this issue. I am looking for shared experiences and stories.
Okay.

So I've had what my pcp has called "pectus excavatum" for years. A hard bone bump on the left side of the middle of my sternum.

I had physical therapy today. And my physical therapist figured out that "bump" was THREE RIBS that have been ON TOP of my sternum! And she moved them back down to the side?!!

It has been like this for five years. I thought I had a bone deformity. And now it's just completely flat and I have to think about not breathing deep enough to sublux my ribs back on top of my sternum.

Has this happened to anyone else??? Because apparently I've just set the record for weirdest thing my pt (who exclusively treats eds) has EVER seen.

Trying this here because the r/ehlersdanlos mods think I'm a child for some reason

Okay.

So I've had what my pcp has called "pectus excavatum" for years. I've had a hard bone bump on the left side of the middle of my sternum.

I had physical therapy today. And my physical therapist figured out that "bump" was THREE RIBS that have been ON TOP of my sternum!?! And she moved them back down to the side?!!

It has been like this for five years. I thought I had a bone deformity. And now it's just completely flat and I have to think about not breathing deep enough to sublux my ribs back on top of my sternum.

Has this happened to anyone else??? Because apparently I've just set the record for weirdest thing my pt (who exclusively treats eds) has EVER seen.

Hello! I (hEDS, AMPS, POTS, Me/CFS) recently bought a folding electric wheelchair (OAS air ultra) to be able to do an important internship. It's made me realize that I maybe do actually need a wheelchair, as it's pretty much the only way I've been able to survive a 40 hour work week. However, it's quite uncomfortable to sit in, because it's not made for my measurements. I've done some modifications with my PT, but they are less than ideal, so I'm considering starting the process of getting a manual chair with a power assist.

I had a question for custom manual wheelchair users (specifically those with nerve pain and/or rib and hip subluxations): Do they still hurt to sit in after multiple hours if they're fitted properly? Any advice would be appreciated!