Kineret
What were your side effects and why are you on it? I’m deathly afraid of being allergic as I also have MCAS.
u/Secure_Lab_1773 — 1 day ago
Any ideas ?
-negative ANA
-elevated CRP (for years), sedimentary rate, histamine, and tumor necrosis factor, and IL-B leutorkine
-negative genetic testing (invitae)
Symptoms:
-pericarditis after Covid vaccine in 2021
-muscle aches in calves and arms and neck
-EXTREME fatigue
-insomnia
-hot flashes
-scalp pain
-severe sore throats
-bladder/urinary urgency
-daily swollen left eye
-goopy eyes
-daily headache behind left eye & sinus pain
-alternating diarrhea and constipation
-painful glands in neck and behind ear
-painful tongue bumps “lie bumps”
-swollen glands in neck
-dizziness
-random rashes and rash on my back that lasted 6 months
-diagnosed MCAS despite negative tryptase
Any ideas? My rheumatologist says I have some sort of autoinflammatory condition and recommends kineret but I’m scared to do that. Anyone have similar symptoms and a diagnosis? Thanks!
u/Secure_Lab_1773 — 2 days ago