Lhermitte’s DuClos
I have Lhermitte’s DuClos, a slow progressing brain tumor. It is consistently glossed over or ignored in medical settings, likely due to the rarity of the condition or clinician ignorance. I would like to get better treatment, any suggestions on how I do this? I haven’t had an MRI in close to 5 years. My last MRI was a non-success because I had a panic attack in the machine.