u/ShipEconomy2587

Caroline Kingdon was presenting Biobank research which has shown people with ME/CFS (not speaking about severe ME/CFS, but the rest of us) to be more functionally impaired than people with MS and cancer. This was not compared to easily treatable cancer, but with *severe* cancer and is undergoing quite a lot of treatment.

And between 2001–2016, ME/CFS was mentioned on 88 death certificates in England and Wales. ME/CFS is recognized as life shortening

https://www.instagram.com/reel/DYj_Qj7sEWD/?utm_source=ig_web_copy_link

We are sick no matter what others believe about our lived experience.

Health professionals and other people try to frame it as a cult, where we encourage each other to become scared of movement, confined to our beds, imagine symptoms.

Patients are even encouraged by some doctors and families to stay away from other ME patients especially online forums like this is some sick religion

They talk about ME using phrases such as “that won’t happen to me, because I would never do that to myself”. As if staying away from this “belief system” will protect you from the disease