u/Shoddy-Pomelo5966

▲ 7 r/UlcerativeColitis+1 crossposts

UC flare

Hey guys I’m fairly new to the whole UC disease, just having over 6 months now diagnosed in January. I started having severe urgency so ended up doing a colonoscopy and was diagnosed with proctitis. The urgency has been the worst part for me as I end up going around 15 times a day which blood and mucus, mostly in the morning and then it starts to taper off. Medications wise I have tried mesalamine oral, enema, and suppositories, hydrocortisone enemas, and one course of prednisone. I am currently starting another course now as my urgency has been quite severe still. I am a bit frustrated as I just tapered off a course of
prednisone two weeks ago and it really didn’t do anything for me (which was quite odd to me as I still had urgency and blood). I have tried entyvio for 12 weeks and am currently transitioning to stelara when my insurance approves it and likely remicade after if stelara doesn’t work. I am gluten free now and have cut out most sugar and carbonated drinks and have tried low fodmap but to no avail. I am just extremely exhausted and sick of having accidents driving to work. I am an ICU nurse so my job is fairly stressful. I just wanted to share my experience and see if anyone has had anything similar symptoms wise and/or any advice on how to manage this urgency as it has been severe for the last six months. Thanks guys!

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u/Shoddy-Pomelo5966 — 3 days ago