u/SidJean

▲ 6 r/chiari

Curious: was your brain tissue removed during decompression? And what was your herniation size?

Brain tissue removed? Herniation size?

I was 3mm and did not require brain tissue removal (cauterization).

(Edit: in my area ten yrs ago the diagnostic was 3mm - 5mm herniation. I had many classic symptoms and from as early as 3yo. Also tested my CSF pressure and found to be high. Surgery very successful)

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u/SidJean — 2 days ago

Dr said many patients still feel tired despite successful PAP treatment. Prescribed Armodafinil.

My doc said too few Sleep Specialists warn patients that despite successful PAP treatment they often remain tired during the day.

I was often napping the afternoon away. So he prescribed Armodafinil, described it as a “non-stimulant stimulant”. It helped quite a bit.

Anyone else in the same boat?

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u/SidJean — 7 days ago
▲ 3 r/chiari

Surgery incision recovery

Occipital craniectomy with duraplasty and laminectomy using scalp material for dura and a long suture as closure. Day 3 - day 17.

u/SidJean — 13 days ago

Here's a glance at the sleep study results the doc went over.
Doc prescribed an ASV (Adaptive Servo Ventilator) which is a noninvasive ventilator that looks like a CPAP. Felt immediate improvement and have been using it since.
Ask any questions

u/SidJean — 15 days ago