u/SillyStringBandit

I just got confirmation that the lupus has began to fuck my lungs. I am starting Cellcept and possibly Rituximab if Cellcept doesn’t work. and weening off prednisone, but staying on HDQ. 60mg of Prednisone daily is the only thing that seems to be working. I have been hospitalized 6 times since December, twice with Lupus Pneumonitis/ acute respiratory failure. I was supposed to start Benlysta but the ILD clinic said it won’t help protect my lungs. Does anyone have experience with Cellcept? I’m exhausted from it all.

My Rheumatologist is moving me from Plaquenil to Benlysta. I start the loading dose infusion next eeek. Has anyone else had any experience with this? I’m am curious if in the day(s) after I should expect any negative reactions? Should I plan to take off work? Any insights are welcomed.