My hair is falling out a lot
God bless you all! I also have Sjögren's syndrome, diagnosed years ago. I'd never seen anyone with this type of illness until now, when I found this app, and I'm glad because I have so many questions. I don't take anything for it at all, and I'm worried because lately I've been feeling very bad. I even started taking Plaquenil, but my rheumatologist told me not to take it anymore because it doesn't really do anything for the condition. So I haven't taken anything since then. I'd like someone to tell me what Plaquenil does for Sjögren's, if it really works or not, because my doctor took me off it. Right now, my hair is falling out a lot; it's been going on for about a year straight, sometimes less, sometimes more. It's driving me crazy because I don't see any hair growing back because of the hair that's falling out. I have very little hair. What shampoo do you recommend for Sjögren's? Why is my scalp so dry, and my hair is extremely dry? I've tried so many things and nothing good happens. Please, someone tell me, I'm desperate. My doctor doesn't tell me much; they just leave me with the same worries. Also, my stomach is terrible. I had an endoscopy recently, and they found several large polyps that I need surgery to remove. They told me that's also due to Sjögren's syndrome. Obviously, I can't eat properly; I'm always in pain, burning, and nauseous. It's awful, not to mention the constant fatigue—it's horrible. What makes it worse is that my hemoglobin has dropped significantly; I have anemia, and that makes me even more tired. This condition is truly awful; it's not something to take lightly. And my family doesn't believe it and accuses me of exaggerating and saying it's all emotional. It's so frustrating because nobody understands. Please, someone advise me on whether Plaquenil would help. Does it really work for this? And what do you do when so much hair falls out? Because I've tried everything, even natural things, and nothing works. And what's a really moisturizing shampoo that's good? And for anemia, how do you raise blood hemoglobin levels? And what medications, if any, are there for Sjögren's syndrome other than Plaquenil? Please, someone tell me, thank you.