u/Spiritual_Feed_241

▲ 10 r/ostomy

Permanent in Stoma vs Jpouch surgery

As the title likely suggests I’m in a dilemma and really struggling

Im from the uk and had a subtotal colectomy with end Ileostomy back in 2021 because of ulcerative colitis.
My rectum was left in situ but pretty much immediately since my surgery I developed diversion proctitis. Which is basically inflammation just like my UC but caused from there being no use for my rectum any more.

I was only diagnosed with UC in 2021 and my surgeon advised my within 10 years I need to either have my rectum removed ( total proctectomy ) or opt for the jpouch surgery

I’ve read so much on both and I’m honestly so conflicted but what matters most is I’d love to hear people’s real lived experiences of either surgeries the good and the bad. Any help or advice would be very appreciated

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u/Spiritual_Feed_241 — 3 days ago