Newly diagnosed: Question
I (43F) was diagnosed with Specific antibody deficiency about 2 months ago. I will be starting SCIg Xembify next week.
I have never had a day without post nasal drip in my life, but the ENT tells me my sinuses are clear. I have had allergy tests that I've been told "make no sense". I've tested allergic to more than 20 food and 30 inhalents, then 10 yrs later only tested mildly positive for 7 inhalents. Was told they didnt feel it necessary to test my foods again. I've taken multiple skin allergy tests over the years and they all show something different.
I also have reactive asthma and sometimes require albuterol treatments.
Starting a little over 1yr ago, I randomly lose my voice for a few hours and then it comes back like nothing happened. I asked the ENT and he said my throat is dry and I need to drink water. I drink a LOT of water, water is not an option for me. I have some family that make fun during episodes of losing my voice because the sound goes in and out while I try to talk. Its so painful.
Does anyone else get this? And if so, what has helped? I am currently in an episode and it feels like my throat is raw, but I know in a couple hours, it will only feel scratchy and I will talk fine.