u/Successful-Tea-733

It is clear that nothing is going to change unless the inadequate levels. Are changed and the useless b12 serum test is replaced by active b12 test etc.

Drs will have to abide by this then saving much suffering.

This actually says if patients are experiencing debilitating fatigue neuro symptoms cognitive symptoms some patients need higher levels etc..and this should be taken into account rather than the range.

Drs are clearly doing people a disservice.

Can't see the bigger picture....just what's in front of them

This is vety useful I find

Says diagnosis is challenging

Hi though you may be interested in this.

Along with myself many have been dismissed,fobbed off ignored,or made to think its a mental issue!

While coping with a serious illness,made to feel they are neurotic,hypochondriac or time wasters.

This does serious psychological harm

Dealing wirh drs with extreme fatigue and brain fog!

​

https://www.amjmed.com/article/S0002-9343(24)00396-6/fulltext

Advice please

I started taking methylcobalamine 2 mths ago 1000mcg

No side effects for that period.

Then suddenly pounding heart shaky,adrenaline rushes etc.

I looked on here and it fitted overmethylatopn but surely that would occur from the start? then I thought that it was wake up symptoms.

Something feltcreally off though and intuitively looked about ferreting being used up at a a rate of knots during suppimentation!

Dropped levels etc.

As my ferritin was around 13 ...classed as ok uk...I stared taking 6o mg ferrous glycinate 2 wks ago.

I am literally scared if restarting supplementation b12

As it was scary expetience

Any advice on this?

Is ferritin low the likely cause

My bood level of b12 had risen so the methylcobalamine was working.

Also does this active form store in the liver?

If it was overmethylation

Is that a good thing

I have not tested for the gene as regards intolerance to methyl

Also injections also drain ferritin?