Very high chatacholmines, sever e neuro psychiatric issues and systemic disease- paraganglioma or other?
My primary issue was systemic. After covid i was in great ohysical shape from weight teaining and hiking. So was very confused why i could hardly walk. Written off as long covid, small fiber neuropathy, sjogrens and 20 other dx including myopathy. Neuro said ita post covid and i need rituximab. Biologic cancer agent. Other neuro didnt agree. Got ivig. Reacted to it neurologically. Long journey 6 years. About to start scig and fluids at gone and thrn i requested these labs as i knew i was having chatacholmine surges im awake 4 days like im on crack. When i took these labs, i was blacking out, so they were not at their highest. Facial edema along with the double chin on my neck that does resolve spontaneously along with upper abdomen, distention.. Right now, im confused, cant ubderstand what in looking at, feel crazy, hurt all over, body is buzzing like a an lawn mower. One result of having my blood pressure crazy high for years is now i have rare heart failure of a 70+ yr old. Hfpef. Lv caddiac failure and cerebral vascular disease. I have so many issues as the problem… I walk in saying that my face and my neck is swollen… I walk in with the advocate… They want to know how long I've been sick and it is Covid but things have changed, I have bilateral atelectasis I have brain atrophy, I have gray matter loss, white matteries, … In the worst part is my neurologic state, but it only will start clearing up over three days… Then I could walk straighter and I could even drive… But if I go to sleep had a stroke and I'm very confused and I usually just for about 12 hours… does anybody have any ideas how I should approach? I don't wanna get sent home from the hospital and die, my blood pressure is really high but when I get up right and I start blood pressure normal… Neurological but at one point are they gonna treat? Going home with 180/40 with 129 heart rate is not very safe taking my cerebral vascular disease worse it's making my heart worse. I'm gonna have a heart attack or a stroke… What can I say to make these people at least try to get my vitals into range if they're not gonna figure something out?