anybody with lots of chest pain that didn’t turn out to be thoracic?
hey all. i (23f) have polycystic kidneys and tonic clonic seizures and a couple other things that just go to show that I’m not winning any genetic lotteries lol.
I’m currently undergoing evaluation for endometriosis and I just had an MRI to map out exactly where my kidneys sit because they are enlarged, and that will complicate the laparoscopy.
What concerns me is this distinct pain that keeps coming back to my chest. I can’t differentiate if it is truly inflammation pain or if it is referred pain bouncing around in there, but I’m hesitant to dismiss it as the latter because it keeps coming back to the exact same spot under one breast and in a parallel spot around my upper back. That’s the spot where it started, but now when things flare, I can feel it elsewhere in my chest and sometimes really sharp directly in between my boobs. When everything else flares, breathing becomes genuinely painful. I’m concerned that it might make things more complicated working around my giant kidneys if they have to enter at the ribs to check for any pleural involvement.
Is this something I should seriously stress to the care team before they go in? Anyone that had lots of intense chest pain turn out to not have the thoracic kind? I know this is a full body inflammatory disease, it’s just throwing me off that it keeps coming back to the exact same spot.