New here!
23/NB just diagnosed with posterior uveitis last week! I also have OCT, Chorioretinal lesions, and mild disc edema. Idrk what all that means it’s just what was in my impressions in my clinical notes. Everything the doctors say is a bit confusing. I’ve never had vision problems before, but I am also diagnosed with familial ademosis pyllopsis or F.A.P for short. So medical issues aren’t new for me. In short I just came to say this experience has been very isolating. I feel like I cannot find people like me I guess. Idrk. This is all so confusing. I have big large grey area in my left eye, and recently have developed some floaters in the good part of that eye which is very little. I can still see through the grey area sometimes everything is just grey. Doctors say I will not be getting my vision back. Just never thought I’d ever lose my vision like that. Thankfully only in one eye. I just feel so alone and lost and would love some guidance, advice, kind words.