u/TeamRocketsWobbafet

Embarrassing Moment

Can you guys tell me your most embarrassing moment at your internship? Today I invited a bunch of people to go to a cafe and hang out and I asked them face to face and they told me yes and they all flaked on me. It just felt mad embarrassing that I initiated plans and no one cared for them. My friend ended up pulling up and we had a good time but I’m also kind of dreading of showing up and people asking me how did it went and the only thing I can say is no one showed up

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u/TeamRocketsWobbafet — 3 days ago
▲ 6 r/lupus

Lupus and Liver Issues

I know this has been brought up in the past before, but I’m curious about people’s experience with Lupus and issues with liver. My Gastroenterologist said I have fatty liver and I am kind of confused because I don’t eat poorly and I rarely drink. When I do drink, I drink one or two shots. For reference I am asian, I heard asians have a harder time processing alcohol, but I’m not sure if that’s related.

Is there any resources I can use to learn more about this? I am just kind of confused why my body is so bad at processing things. No fatty liver in the family either

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u/TeamRocketsWobbafet — 11 days ago

Two months of progress!!

I got recently diagnosed with Lupus, and have been on medication and biotin for a month! Little bits of hair are finally growing back :,)

First two pics are from like April, and the last two are taken today

Hope everyone has an amazing week ahead of them!

u/TeamRocketsWobbafet — 14 days ago
▲ 49 r/lupus

Lupus and Stress

Hey all,

I’ve been reading “When the Body Says No” by Gabor Mate, and it’s a collection of a doctor’s thoughts about how autoimmune diseases are linked to mental stress.

Personally for me, I felt that it read me to a tee. I am extremely hardworking in my life — I still balance eating good and getting sleep though. I love my family very deeply despite them being not so perfect and verbally abusive. Lately I realize I feel a lot of stress to respond to people when they present to me a need, it’s been my automatic response to be there the best I can. I find it hard to speak up if I don’t think it’s reasonable sound; just my emotions are not enough. I feel pressured to perform because my family is poor, and I do not have the liberty to make mistakes that are costly.

It’s hard to break out of it but I am trying. But another part of me also feels like we are getting punished for being the ones who care deeply and selflessly. I wish the world extended more patience and love and care instead.

Does anyone else relate? How have you incorporated changes in your life?

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u/TeamRocketsWobbafet — 1 month ago
▲ 69 r/lupus

Hair Loss Rant

Recently diagnosed a few weeks ago with Lupus and Hashimoto’s and I started Levothyroxine and Hydroxychloroquine. There’s also something going on with my liver, so I’m figuring that out with a GI doctor. I feel a little defeated and frustrated because I had gone to my Primary care in January, and I had a butterfly rash across my face. I thought it was acne, and she thought so too, though she didn’t even closely examine it. It wasn’t until my symptoms kept worsening that I pushed for bloodwork in April and finally got diagnosed.

I’m grateful for medicine; biggest thing it has improved is my energy levels. But I just feel so sad looking at myself some days. I don’t hate myself or the way I look, it just feels unfair to have to deal with losing nearly half my hair. Sometimes I still feel envious of the hair I used to have, or everyone around me not having this issue at all. Everyday, chunks of it just comes out in the shower or in the morning. The arthritis has been rough too. Some days I feel like my leg just isn’t functioning or my fingers are so tense I can’t even scroll on tik tok. It’ll take a bit for the medicine to kick in and help, but in the meantime I just feel a bit alienated from my peers. We just graduated and I just started my internship, and I have to go to 2 appt every week. And copays have been so expensive 😭

This is more of a rant, and I’d really like some encouragement.

u/TeamRocketsWobbafet — 1 month ago