u/Technical_Maybe_5925

Had my index surgery August 2024, revision April 2026, I am a minority here, as my hip replacement and revision have not been positive, except that my recovery for both the index and revision happened in the warmer months so I am able to spend more time outside. I do my exercises outside, I'm sitting less at the computer. I have a dragonfly and humming bird that visit me.

I was thinking about my hip and was wondering for those of you who were creeped out by having a big chunk of metal that was not your original hip - when did the creepy feeling about your joint go away? Or another way is how long did it take you to trust your hip?

My index surgery was 22 months ago, and my revision was almost 10 weeks ago. I may have strong feeling just because of all the negative things that have resulted from this hip. I realize that I am very much in the minority here, but I really regret that I had my hip replaced, and I'm sure this thought plays into my being creeped out by my hip and honestly I don't have confidence that it will last long.

It's nearly 8 weeks post revision, for a joint that was leaching cobalt and chromium into my body. I am fatigued beyond what I was for my primary, but I know I'm 20 month older, and 20 months deconditioned, and I lost 500 ml of blood in the surgery, but I expect to see some forward progress in this fatigued I feel. Today I had somewhere I had to go to but I was so tired - 2 hours after sleeping well in the night (according to my fitbit) I had to lay down and take a 2 hour nap, after being up for another 2 hours I layed down and took a 3 hour nap, This is a very almost daily schedule since my revision. I asked the PA at my 6 week post op and he said normal, but I've never had this kind of fatigue before. My union rep is asking when I can finish my FMLA, and go back on preferred hiring, at this level of fatigue I just don't see myself being ready right now. This does not seem normal to me, I'm a regular blood donor, I know what 500 ml of blood loss feels like. After my primary during my first week I had more energy than this, My heart rate, blood pressure, and o2 are all normal for me. My cobalt levels have fallen by more than 75%, to just above normal. I have my annual physical in August but I am thinking about going into urgent care just to get a full blood panel.

After my primary surgery I had energy, so this is a real surprise, I feel like I've been hit by a freight train.

Thoughts - normal? not?

Early revision people how did you deal with the anger and betrayal with the doctors who could have correctly diagnosed the problem but failed to do their job? I'm 5 weeks post revision 21 month post primary surgery and thinking about what I lost because my surgeons failed me. I've lost job, physical conditioning, time ( I did 92 pt sessions) financial loss, and peace of mind. My wife has spiraled into anxiety and depression because of my pain and suffering. Seeing how much different the revision is than the first surgery just highlights how much my primary surgeon, and 2nd surgeon missed the mark even though I was suffering with 7-8/10 pain with in the first 3 months they didn't provide any real solutions.

I am happy that my revision recovery is going better than the first surgery but I just feel stuck because of all of the stuff I went through. I am reaching out to a counselor but I don't have a lot of hope as previous counselors have not been much help.

Before my revision I knew that annually I would get a X-ray with my hip, now that I have a revision do I use revision date for appointment or primary surgery date, and since there are parts from two surgeons who do I see? I think I would see revision doctor but my brain sees two different surgeries. Sorry I'm sure I'm over complicating this

I bought one of the cast iron ingots off of Amazon. I honestly cannot say that the taste is different, though the water color changes. Has anyone else purchased these ingots? What did you think?

I suffered with my primary total hip replacement for 19 months before it was revised. I retained the parts. What I saw was both rotational and rocking wear on the liner. Surgical notes said there was a significant amount green-black fluid between the cup and the metal liner. From what Dr. Google says and my surgeon, and my PA, the only way for the liner to disassociate from the shell is through a traumatic event, or the liner never have been seated correctly during surgery.

I found a Stryker document that in my mind acknowledges that there is a issue with proper seating of the liner https://www.stryker.com/content/dam/stryker/no-index/training-and-education/jr45/season-3/march/resources/MDM_Surgical_protocol_JR_GSNPS_SURGP_1003536_EN_US.pdf page 14 in text under the caution in the box.

So Sryker in my mind has said this is a know problem, look out. So is Styker at fault for creating a joint that is difficult to install correctly in surgery, or is it surgical error and was my doctor just being careless in surgery?

At the end of the day I had a failed hip due to metallosis, I lost my job because of my ongoing pain and from what I now realize was cobalt poisoning. I am amazed at how fast post op the symptoms of the constant headaches, nausea, itching, changes in vision, ability to speak, ability to think have improved. One of my friends was telling me about the Iron Man 2 and Palladium Poisoning

While Metal Man (2008) ignores metal toxicity, Iron Man 2 (2010) centers its plot around palladium poisoning.  

My friend said my face looked like the Iron man character's makeup - he was surprised at how accurately the movie created the look of metal poisoning - which he saw in my face.

Thoughts - again I know I obsessing, but I think most people would want to know why a really bad thing happened to them. Thank you for your kindness

My revision was 17 days ago. This morning before I moved out of the bed I noticed something that I've not had for a long time. While lying still I was actually pain free. I'm so thankful for this pain free moment. It's such a relief after suffering near 20 months with 7-8/10 constant pain that would wake me up at night.

I had my revision done last week and was told by my lawyer to request the parts. I've learned a few things.

1. nuclear bone scans are terrible for showing loosening.
2. Side effect from metallosis can happen pretty early on - I thing my cobalt levels were on the low end of the scale, but I was having pain, and neurological symptoms, I was also have terrible nausea starting around 10 months, before my 1 year post op mark, and by 16 months I was experiencing significant neurological issues. https://pmc.ncbi.nlm.nih.gov/articles/PMC4750564/
3. I am completely blown away how quickly I felt better after the bad parts were removed - I was thinking this has got to be a placebo effect , but family members are noticing that I now can string words together into a sentence. My pain is greatly reduced, even early ROM is better than before the surgery. I'm not had a headache since the surgery (before it was nearly daily), I still have the flashing lights that I see in my eyes, while not gone are affecting a much smaller area. I started seeing changes 1 day after the surgery.
4. Even when images and doctors keep saying everything looks good and placement is normal, and cobalt levels are in the safe zone, and as sure as the doctors think they are until they cut you open there is no way to know what really is wrong.
5. I can see the gray material on my liner, I can see the wear on the liner, telling me that the liner was moving around in my cup, I was told that the inclination of my cup was creating a impingement condition - which is most likely why I could not flex beyond 90 degrees. So metallosis can happen in a ceramic on poly MDM hip.
6. My first indication that something was not right increasing pain that did not resolve with rest. Within the first 6 weeks I was already complaining that it was not right, by 3 month post op I was going to Immediate care because of 8/10 pain. I pretty on aware of the neurological symptoms until the 10-12 month mark.

By the books this is really rare, but it 100% happened too me. If you or a family member has increased pain, rising cobalt levels (even if the levels are low) and generally they or you don't feel good keep pushing for the cause. I was repeatedly told, It's just scar tissue. Knowing what I know now I would never allow anything with cobalt or chrome back into my body

https://preview.redd.it/gykk32ke31yg1.png?width=3332&format=png&auto=webp&s=f285cd75086c47b6a7939a47cedfb77ac31ad1de

this is the image my parts the liner is the silver dome - wear can be seen on the side facing us