u/Temporary_Date_4577

I’m 35 and I’m so over all this to be honest. I’m so tired of being tired. Between the pain meds and revlimid everyday truly feels like an absolute drag. Just not sure if it’s worth the maintenance for the extra time on this planet.

I’ve tried looking into the overall survival and see it does make a difference but I’m mrd- after my stem cell. It’s just truly never ending and I just want to live a normalish life. Feel like I’ve been robbed of that and my only way to have a semi normalish life is to stop maintenance and get off the pain meds.

Just looking for experiences of people who have opted out of maintenance.