u/These-Biscotti4096

Bad news

So I'm here because I've been given the results of my most recent pet scan. For some background i have been stage 3c since I was diagnosed in 2015 became Ned had a recurrence in 2020 stage 3c recurrence in 2024 stage 3c recurrence in 2025 stage 3c which led to localized mets in my left breast and a mastectomy. I planned on reconstruction after radiation. I started having pain in my right upper back and figured where I had been recently working out that I pulled a muscle. After a whole it got a bit worse and my primary diagnosed me with pneumonia I was put on antibiotics and it seemed to be getting better but then took a turn. I went to the hospital because it was so painful I figured I just needed a stro get longer course of antibiotics. They did a ct and I was told my bloodwork showed no sign of infection but it could be fungal and the ct read it was either that or mets. I had a Pet scan only days later and for the first time ever after only 3 hours my oncologist himself called to give me the results as he said it's not good. I now have mets in my lungs as well as my sternum I am now stage 4. My radiation course was changed to focus on my sternum and I have opted tp participate in a clinical trial that focuses on a genetic deletion my tumors show. I wa Ted to do TILs but because of how fast it spread I don't know if the period of 6ish weeks it takes to grow my cells and doing nothing but waiting would be a good idea. I do still have other options if the trial doesn't show any results I can do TILs, mek, chemo. I have failed every i.munotherapy and have shown a resistance to pdl1's.

My current problem within this is the amount of pain and nausea. They had me meet with palliative care and I now have pain meds but they don't seem to be working very effectively I have a fentanyl patch and oxicodone to back it up. Does ot take time for the patch to get onto your system and work?

I am devastated heartbroken and mad I am physically exhausted and so easily annoyed by everything and everyone around me. Don't worry I also have a referral for therapy because wow do I need it.

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u/These-Biscotti4096 — 14 days ago

Mastectomy

I've had melanoma now 4 times. Always in the same place. Stage 3c. This time it spread to my breast tissue. I had a 4 cm tumor in my axilla chest wall area and over 20 tumors in my breast. 8 of them were positive for melanoma. I had a mastectomy of the left beast and a wide excision for the 4th time. Just wondering if anyone else has had a mastectomy because of melanoma.

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u/These-Biscotti4096 — 2 months ago

Heck of a month!!

I have stage 3c amelanotic nodular melanoma for tge 4th time in 10 years it metastasis to my adjacent breast. I had a mastectomy and lumpectomy on 5/12. Over the past couple months I've been dealing with these horrible stomach attacks that I've been to tge er for 5 times and I patient once right before mastectomy. First was told gastritis then mild pancreatitis then full blown pancreatitis now it's been discovered that it's actually gallstones and I need my gall bladder removed and an mri because there is some type of cystic area on my pancreas! I'm so over all of this in can't eat anything but mashed potatoes and lipton noodle soup and jello. I'm on toradol and percocet just in case I have another attack I see a surgeon on Monday and I had to take pain meds to avoid the er again tonight. I'm afraid of having it out I've heard horror stories but st the same time both my sister and her husband live completely normal lives without theirs. I still have drains in from the mastectomy and am not even healed from that. I see my plastic surgeon on Monday afternoon hopefully the drains can come out but on Monday morning I see the general surgeon to talk about and possibly schedule that surgery. I'm not even healed from the first one now I have a whole new problem and I just wantvso had to be healthy it's so depressing .

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u/These-Biscotti4096 — 3 months ago