Bad news
So I'm here because I've been given the results of my most recent pet scan. For some background i have been stage 3c since I was diagnosed in 2015 became Ned had a recurrence in 2020 stage 3c recurrence in 2024 stage 3c recurrence in 2025 stage 3c which led to localized mets in my left breast and a mastectomy. I planned on reconstruction after radiation. I started having pain in my right upper back and figured where I had been recently working out that I pulled a muscle. After a whole it got a bit worse and my primary diagnosed me with pneumonia I was put on antibiotics and it seemed to be getting better but then took a turn. I went to the hospital because it was so painful I figured I just needed a stro get longer course of antibiotics. They did a ct and I was told my bloodwork showed no sign of infection but it could be fungal and the ct read it was either that or mets. I had a Pet scan only days later and for the first time ever after only 3 hours my oncologist himself called to give me the results as he said it's not good. I now have mets in my lungs as well as my sternum I am now stage 4. My radiation course was changed to focus on my sternum and I have opted tp participate in a clinical trial that focuses on a genetic deletion my tumors show. I wa Ted to do TILs but because of how fast it spread I don't know if the period of 6ish weeks it takes to grow my cells and doing nothing but waiting would be a good idea. I do still have other options if the trial doesn't show any results I can do TILs, mek, chemo. I have failed every i.munotherapy and have shown a resistance to pdl1's.
My current problem within this is the amount of pain and nausea. They had me meet with palliative care and I now have pain meds but they don't seem to be working very effectively I have a fentanyl patch and oxicodone to back it up. Does ot take time for the patch to get onto your system and work?
I am devastated heartbroken and mad I am physically exhausted and so easily annoyed by everything and everyone around me. Don't worry I also have a referral for therapy because wow do I need it.